Authors:
Laura Moss
1
;
Martin Shaw
2
;
Ian Piper
2
;
Christopher Hawthorne
2
and
John Kinsella
3
Affiliations:
1
University of Glasgow and NHS Greater Glasgow & Clyde, United Kingdom
;
2
NHS Greater Glasgow & Clyde, United Kingdom
;
3
University of Glasgow, United Kingdom
Keyword(s):
Big Data, Privacy, Critical Care, Data Analysis, Trust, Data Security.
Related
Ontology
Subjects/Areas/Topics:
Biomedical Engineering
;
Cloud Computing
;
Confidentiality and Data Security
;
e-Health
;
Health Information Systems
;
Platforms and Applications
Abstract:
Advances in technology has transformed clinical medicine; electronic patient records routinely store clinical
notes, internet-enabled mobile apps support self-management of chronic diseases, point-of-care testing enables
laboratory tests to be performed outside of hospital environments, patient treatment can be delivered over wide
geographic areas and wireless sensor networks are able to collect and send physiological data. Increasingly,
this technology leads to the development of large databases of sensitive electronic patient information. There
is public interest into the secondary use of this data; many concerns are voiced about the involvement of private
companies and the security and privacy of this data, but at the same time, these databases present a valuable
source of clinical information which can drive health informatics and clinical research, leading to improved
patient treatment. In this position paper, we argue that for health informatics projects to be successful, publi
c
concerns over the secondary use of patient data need to be addressed in the design and implementation of the
technology and conduct of the research project.
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