Towards the Standardization of Disease Registry Form Structure

Fatimetou Sidina; Hatem Bellaaj; Mohamed Jmaiel

Research.Publish.Connect.

*Please fill out at least one Field. *Value must be an number!

Title:
ISBN:
Year:
Acronym:
Subject:

Advanced Search Proceedings Search

If you're looking for an exact phrase use quotation marks on text fields.

*Please fill out at least one Field.

Title:
Author:
Affiliation:
Subject:

Advanced Search Papers Search

If you're looking for an exact phrase use quotation marks on text fields.

*Please fill out at least one Field.

Name:
Affiliation:
Country:
Conference:
Subject:

Advanced Search Authors Search

If you're looking for an exact phrase use quotation marks on text fields.

*Please fill out at least one Field.

Name:
Country:
Subject:

Advanced Search Affiliations Search

If you're looking for an exact phrase use quotation marks on text fields.

Proceedings

Proceedings Search *Please fill out at least one Field. *Value must be an number!

Title:
ISBN:
Year:
Acronym:
Subject:

Advanced Search Proceedings Search

If you're looking for an exact phrase use quotation marks on text fields.

Papers

Papers Search *Please fill out at least one Field.

Title:
Author:
Affiliation:
Subject:

Advanced Search Papers Search

If you're looking for an exact phrase use quotation marks on text fields.

Authors

Authors Search *Please fill out at least one Field.

Name:
Affiliation:
Country:
Conference:
Subject:

Advanced Search Authors Search

If you're looking for an exact phrase use quotation marks on text fields.

Advanced Search

Paper

Towards the Standardization of Disease Registry Form Structure

Topics: Clinical Informatics; Electronic Health Records

In Proceedings of the 10th International Conference on Information and Communication Technologies for Ageing Well and e-Health ICT4AWE - Volume 1, 250-257, 2024 , Angers, France

Authors: Fatimetou Sidina ; Hatem Bellaaj and Mohamed Jmaiel

Affiliation: ReDCAD Laboratory, University of Sfax, Sfax, Tunisia

Keyword(s): Disease Registry Form, Structure, Standardization.

Abstract: This paper presents a set of specifications for disease registry forms that vary from one registry to another, emphasizing their standardization to ensure better interoperability and data analysis. After an in-depth review of the state-of-the-art disease registry forms, we introduce a standardized structure adhering to the essential data standards set by EPIRARE (Taruscio et al, 2014), a project funded by the European Union to improve standardization and data comparability among patient registries, while respecting all question suggestions provided by the Patient Registry Item Specifications and Metadata for Rare Disease PRISM project (Richesson, Shereff and Andrews, 2012). This structure has been validated on several registries currently in use, demonstrating a high level of accuracy.

CC BY-NC-ND 4.0

Guest: Register as new SciTePress user now for free.

SciTePress user: please login.

My Papers

You are not signed in, therefore limits apply to your IP address 18.225.56.194

In the current month:

Recent papers: 100 available of 100 total

2⁺ years older papers: 200 available of 200 total

Paper citation in several formats:

Sidina, F.; Bellaaj, H. and Jmaiel, M. (2024). Towards the Standardization of Disease Registry Form Structure. In Proceedings of the 10th International Conference on Information and Communication Technologies for Ageing Well and e-Health - ICT4AWE; ISBN 978-989-758-700-9; ISSN 2184-4984, SciTePress, pages 250-257. DOI: 10.5220/0012708500003699

@conference{ict4awe24,
author={Fatimetou Sidina. and Hatem Bellaaj. and Mohamed Jmaiel.},
title={Towards the Standardization of Disease Registry Form Structure},
booktitle={Proceedings of the 10th International Conference on Information and Communication Technologies for Ageing Well and e-Health - ICT4AWE},
year={2024},
pages={250-257},
publisher={SciTePress},
organization={INSTICC},
doi={10.5220/0012708500003699},
isbn={978-989-758-700-9},
issn={2184-4984},
}

TY - CONF

JO - Proceedings of the 10th International Conference on Information and Communication Technologies for Ageing Well and e-Health - ICT4AWE
TI - Towards the Standardization of Disease Registry Form Structure
SN - 978-989-758-700-9
IS - 2184-4984
AU - Sidina, F.
AU - Bellaaj, H.
AU - Jmaiel, M.
PY - 2024
SP - 250
EP - 257
DO - 10.5220/0012708500003699
PB - SciTePress